Comments on: Scientists discover Celiac Disease Can be the Root Cause of most Neurological Disorders http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders Staying healthy in our modern world Sun, 06 May 2012 08:03:34 +0000 hourly 1 By: Jennifer http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-2416 Jennifer Mon, 19 Mar 2012 00:09:56 +0000 http://healthy-family.org/caryn/289#comment-2416 Thank you for all of your information, it is so helpful! My son was diagnosed with attention and memory problems this year. I knew there was more too it and after fighting my way through a lot of non believers, we found out he is allergic to wheat, corn, and peanuts. It's been amazing how things have improved for us/him this year. No more attention issues, mood swings, etc. We are still learning all of the ins and outs of the foods since it's only been a few months. The anti fungal sounds interesting, I will definitely read more. What I haven't been able to find is a list of recommended vitamins along with dosage for children. Do you know of any resources or what kind of doctor I should see about this? Thanks again for the great site! Thank you for all of your information, it is so helpful! My son was diagnosed with attention and memory problems this year. I knew there was more too it and after fighting my way through a lot of non believers, we found out he is allergic to wheat, corn, and peanuts. It’s been amazing how things have improved for us/him this year. No more attention issues, mood swings, etc. We are still learning all of the ins and outs of the foods since it’s only been a few months. The anti fungal sounds interesting, I will definitely read more.

What I haven’t been able to find is a list of recommended vitamins along with dosage for children. Do you know of any resources or what kind of doctor I should see about this?

Thanks again for the great site!

]]> By: Jennifer http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-2168 Jennifer Wed, 14 Dec 2011 19:58:30 +0000 http://healthy-family.org/caryn/289#comment-2168 Gluten can really make a mess of things. It was one of the primary triggers for my son's severe eczema. Once it was removed from his diet, his eczema cleared up 90%. Incredible. Like your son, he didn't test positive with any allergy or sensitivity tests. Perhaps it was just the inflammatory proptoerties of gluten that set him off. I probably will never know the answer, but avoiding gluten certainly isn't too difficult these days and I'm more than happy to do it to keep my son healthy. Gluten can really make a mess of things. It was one of the primary triggers for my son’s severe eczema. Once it was removed from his diet, his eczema cleared up 90%. Incredible. Like your son, he didn’t test positive with any allergy or sensitivity tests. Perhaps it was just the inflammatory proptoerties of gluten that set him off. I probably will never know the answer, but avoiding gluten certainly isn’t too difficult these days and I’m more than happy to do it to keep my son healthy.

]]> By: Nicole http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-1223 Nicole Tue, 13 Jul 2010 18:28:59 +0000 http://healthy-family.org/caryn/289#comment-1223 Hi Caryn, This is a great article. We just diagnosed our 12 yr. old with gluten intolerance a few months ago through an elimination diet. He is experiencing the eye blinking. For the first month they disappeared after taking him off of gluten but they are starting to come back and I am thinking that he is vitamin deficient. I want to get him supplements ASAP but am wary since I have heard bad things about a lot of supplements on the market. Is there any specific brand that you recommend for children? I have tried to give him a well-balanced diet but it doesn't seem to be enough. Any help would be greatly appreciated! Hi Caryn,

This is a great article. We just diagnosed our 12 yr. old with gluten intolerance a few months ago through an elimination diet. He is experiencing the eye blinking. For the first month they disappeared after taking him off of gluten but they are starting to come back and I am thinking that he is vitamin deficient. I want to get him supplements ASAP but am wary since I have heard bad things about a lot of supplements on the market. Is there any specific brand that you recommend for children? I have tried to give him a well-balanced diet but it doesn’t seem to be enough. Any help would be greatly appreciated!

]]> By: Caryn Talty http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-1131 Caryn Talty Mon, 26 Apr 2010 21:22:37 +0000 http://healthy-family.org/caryn/289#comment-1131 Hi Kathy, Here is a listing from our forum board about possible lab tests: <a href="http://healthy-family.org/forum/index.php/topic,8.0.html">http://healthy-family.org/forum/index.php/topic,8.0.html</a>. You will need a doctor's script for an IgG test. Last May I had the honor of meeting Doug Kaufmann from Know the Cause television show. He explained to me that he was an original developer of that test and that the specimens are often contaminated with fungi and so the results are often skewed as a result. In our case the IgG test was the thing that really helped us, but we didn't know anything about fungi at the time and hadn't tested our son for fungal overgrowth issues. But I think there is something to what Doug was talking about, because all the foods we removed, all the foods he tested highly reactive to, were also highly fungal foods. His biggest intolerance besides wheat was corn, and it is the most highly fungal crop in the U.S. The IgG test is expensive and it might benefit you to try an antifungal approach first to see if your son responds positively to it. An antifungal diet is a sugar free, low grain diet that utilizes only specific fruits (high in antioxidants or green) and a variety of veggies and organic grass fed meats. Doug has a diet but it is not dairy free. One of the biggest components in an antifungal diet is probiotics, and you can get dairy free ones. Hi Kathy,
Here is a listing from our forum board about possible lab tests:
http://healthy-family.org/forum/index.php/topic,8.0.html. You will need a doctor’s script for an IgG test. Last May I had the honor of meeting Doug Kaufmann from Know the Cause television show. He explained to me that he was an original developer of that test and that the specimens are often contaminated with fungi and so the results are often skewed as a result. In our case the IgG test was the thing that really helped us, but we didn’t know anything about fungi at the time and hadn’t tested our son for fungal overgrowth issues. But I think there is something to what Doug was talking about, because all the foods we removed, all the foods he tested highly reactive to, were also highly fungal foods. His biggest intolerance besides wheat was corn, and it is the most highly fungal crop in the U.S. The IgG test is expensive and it might benefit you to try an antifungal approach first to see if your son responds positively to it. An antifungal diet is a sugar free, low grain diet that utilizes only specific fruits (high in antioxidants or green) and a variety of veggies and organic grass fed meats. Doug has a diet but it is not dairy free. One of the biggest components in an antifungal diet is probiotics, and you can get dairy free ones.

]]> By: Kathy http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-1130 Kathy Mon, 26 Apr 2010 20:44:01 +0000 http://healthy-family.org/caryn/289#comment-1130 Caryn, I'm glad I've discovered your site! My son has been gfcf for 4 months now in an effort to alleviate tics/nightmares/anxiety/ADD/depression/intestinal issues. I've seen improvements in the tics, sleep disturbances and his "fogginess", but I'd like to investigate additional food sensitivities. Which labs are the most reputable for IGG testing? I assume I will need a doctors prescription for this? Caryn,

I’m glad I’ve discovered your site! My son has been gfcf for 4 months now in an effort to alleviate tics/nightmares/anxiety/ADD/depression/intestinal issues. I’ve seen improvements in the tics, sleep disturbances and his “fogginess”, but I’d like to investigate additional food sensitivities. Which labs are the most reputable for IGG testing? I assume I will need a doctors prescription for this?

]]> By: Caryn Talty http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-1112 Caryn Talty Tue, 13 Apr 2010 18:54:02 +0000 http://healthy-family.org/caryn/289#comment-1112 Hi Marlene, Thanks for stopping by. I mentioned a few tests in the above comments but I realize that I never put out links, so I will do that here. https://www.enterolab.com/Home.htm Enterolab tests for gluten sensitivity and for a limited time, milk screening too, for free, in their stool tests. We have done the stool test, which is much more sensitive than a blood test (important if you have been doing GF already for a while, or if your child is 4 years old and younger because the blood test might be a false negative.) We also did their genetic screening test which is delivered to your house and is a simple cheek swab. http://www.greatplainslaboratory.com/home/eng/patients.asp Another place that we have used is Great Plains Laboratories. They test for yeast and bacteria in the urine as well as nutrient profile. It is called the OAT test (Organic Acid Test). We found it to be very helpful. They also offer a stool test for yeast and bacteria. You can visit a gastroenterologist as well and do the full panel of celiac tests: http://www.labtestsonline.org/understanding/analytes/celiac_disease/test.html We also have a thread from the forum board of possible lab tests: http://healthy-family.org/forum/index.php/topic,8.0.html While you wait for the testing, you can try epsom salt baths and magnesium supplements for those nagging neck pains. If she has a bad neck tic you might want to take her to a chiropractor for an adjustment. Some times this really helps. If her problem is yeast related then the butter wouldn't bother her. Aged cheese and milk would though, as would dairy products that are not organic, pasture raised (because they contain fillers or corn byproducts in them.) Keep us updated on how she is doing and your progress. All the Best. Caryn Hi Marlene,
Thanks for stopping by.
I mentioned a few tests in the above comments but I realize that I never put out links, so I will do that here.

https://www.enterolab.com/Home.htm

Enterolab tests for gluten sensitivity and for a limited time, milk screening too, for free, in their stool tests. We have done the stool test, which is much more sensitive than a blood test (important if you have been doing GF already for a while, or if your child is 4 years old and younger because the blood test might be a false negative.) We also did their genetic screening test which is delivered to your house and is a simple cheek swab.

http://www.greatplainslaboratory.com/home/eng/patients.asp

Another place that we have used is Great Plains Laboratories. They test for yeast and bacteria in the urine as well as nutrient profile. It is called the OAT test (Organic Acid Test). We found it to be very helpful. They also offer a stool test for yeast and bacteria.

You can visit a gastroenterologist as well and do the full panel of celiac tests:
http://www.labtestsonline.org/understanding/analytes/celiac_disease/test.html

We also have a thread from the forum board of possible lab tests:
http://healthy-family.org/forum/index.php/topic,8.0.html

While you wait for the testing, you can try epsom salt baths and magnesium supplements for those nagging neck pains. If she has a bad neck tic you might want to take her to a chiropractor for an adjustment. Some times this really helps.

If her problem is yeast related then the butter wouldn’t bother her. Aged cheese and milk would though, as would dairy products that are not organic, pasture raised (because they contain fillers or corn byproducts in them.)

Keep us updated on how she is doing and your progress.

All the Best.

Caryn

]]> By: Marlene http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-1111 Marlene Tue, 13 Apr 2010 17:57:37 +0000 http://healthy-family.org/caryn/289#comment-1111 Caryn - your information has just blown me away! I have been searching for an answer for about 2 years for my 7 year old daughter. So far I have self diagnosed her with ODD - Oppositional Defiance Disorder and also lactose intolerance and still searching for why she has reoccurring motor tics. After reading your article and all of your replies I can see that there is a clear connection between her behavior and her tics and why she is constantly complaining of stomach aches and sore neck and back. It has been under my nose this entire time! We have tried several times to eliminate dairy and in fact she was the one to enforce that. Years ago we switched from cow's milk to soy because she didn't like cow's milk (I think it fascinating when your body sends you strong messages - we must listen!). Then finding out that there's too much soy in everything we switched to almond and coconut milk. She seems to tolerate butter and the jury is out on cheese. We could never pinpoint her stomach pains. Even if the meal was dairy-free she could still complain. I didn't think it could be CD but maybe that is exactly what it is. What tests do you recommend I get for her? Allergy tests? Celiac test? Tic disorder test? I can tell my daughter is "trapped" in her miserable shell. I know underneath all of the defiance, tics, disobediance and chronic pain that she is a loving girl that just wants to be happy. Can you offer some help in where to turn for tests? Thank you for all your help so far! Marlene Caryn – your information has just blown me away! I have been searching for an answer for about 2 years for my 7 year old daughter. So far I have self diagnosed her with ODD – Oppositional Defiance Disorder and also lactose intolerance and still searching for why she has reoccurring motor tics. After reading your article and all of your replies I can see that there is a clear connection between her behavior and her tics and why she is constantly complaining of stomach aches and sore neck and back. It has been under my nose this entire time! We have tried several times to eliminate dairy and in fact she was the one to enforce that. Years ago we switched from cow’s milk to soy because she didn’t like cow’s milk (I think it fascinating when your body sends you strong messages – we must listen!). Then finding out that there’s too much soy in everything we switched to almond and coconut milk. She seems to tolerate butter and the jury is out on cheese. We could never pinpoint her stomach pains. Even if the meal was dairy-free she could still complain. I didn’t think it could be CD but maybe that is exactly what it is. What tests do you recommend I get for her? Allergy tests? Celiac test? Tic disorder test? I can tell my daughter is “trapped” in her miserable shell. I know underneath all of the defiance, tics, disobediance and chronic pain that she is a loving girl that just wants to be happy. Can you offer some help in where to turn for tests? Thank you for all your help so far!
Marlene

]]> By: DerekChaunessey http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-1035 DerekChaunessey Thu, 25 Feb 2010 06:39:39 +0000 http://healthy-family.org/caryn/289#comment-1035 I've been off wheat, and therefore gliadin, or gluten, since mid-December or so and I still have facial tics, namely forehead twitching and/or eye blinking. Once in a blue moon I've had a pizza or some bread, but honestly, only twice or thrice in this period. In 2010, I've had some corn and rice, but have tried to limit myself to grains in general and instead have been eating more yams and sweet potatoes. There is something called a lectin which is a protein which may cause neurological problems that actually stem from the gut. Something called a Paleo diet, which isn't really a diet but what our ancestors ate for most of history up until agriculture about 10,000 years ago, is free of grains for the most part and may clear up tics. I've been mostly on a Paleo diet since January 1, however I have had various items not encompassed within the diet occasionally, like grains, legumes, dairy, and nightshades (potatoes, tomatoes, peppers, eggplant), which may or may not be encompassed within the diet. I’ve been off wheat, and therefore gliadin, or gluten, since mid-December or so and I still have facial tics, namely forehead twitching and/or eye blinking. Once in a blue moon I’ve had a pizza or some bread, but honestly, only twice or thrice in this period. In 2010, I’ve had some corn and rice, but have tried to limit myself to grains in general and instead have been eating more yams and sweet potatoes. There is something called a lectin which is a protein which may cause neurological problems that actually stem from the gut. Something called a Paleo diet, which isn’t really a diet but what our ancestors ate for most of history up until agriculture about 10,000 years ago, is free of grains for the most part and may clear up tics. I’ve been mostly on a Paleo diet since January 1, however I have had various items not encompassed within the diet occasionally, like grains, legumes, dairy, and nightshades (potatoes, tomatoes, peppers, eggplant), which may or may not be encompassed within the diet.

]]> By: Tina D http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-961 Tina D Tue, 29 Dec 2009 22:28:45 +0000 http://healthy-family.org/caryn/289#comment-961 A bit over a year later (After Celiac Dx Sept 09 for a 7 yr old boy) We have been VERY successful with our son. A year later is getting straight A's and no MAJOR meltdowns. He has a WONDERFUL principal. Last year the principal who had a nurse for a wife stated Celiac does not cause Behavior issues, etc. etc He was CLUELESS. Thank Goodness he retired and we have an awesome principal. Our son has a GF classroom now and all supplies that are used in any classroom where he is are GF! They made the art room, music room, etc. GF. They refused last year! This year his behavior is off some days but he's an 8 year old. He started 1st grade at barely over 30 pounds. He was weighed today and he weighs almost 58 pounds. He is still pretty thin but he's not petite or fragile looking like he was in the past. We are still giving him supplements (Vitamin B, Omega 3, Nordic Berries, Calcium, Magnesium, Vitamin D, K, C, etc.). His teacher this year has been such a God send and his resource teacher has been a great addition to the team. Her first comment at the beginning of the year was that she didn't think he should be in the cafeteria so he is no longer eating lunch where he was getting glutened on a regular basis last year (his teacher, principal and resource teacher last year just acted like he was a behavior issue and that it was my issue). This year it's a great partnership with the school. Last year we picked him up almost every day. This year we have not had to pick him up once... Why? Because his teachers and administrator understands him and gets how to deal with the issues. Yes we are still working through some behavior issues with him, BUT his improvement is nothing short of miraculous this year. Thanks for all the support you give and advice you share. A bit over a year later (After Celiac Dx Sept 09 for a 7 yr old boy)

We have been VERY successful with our son. A year later is getting straight A’s and no MAJOR meltdowns. He has a WONDERFUL principal. Last year the principal who had a nurse for a wife stated Celiac does not cause Behavior issues, etc. etc He was CLUELESS. Thank Goodness he retired and we have an awesome principal. Our son has a GF classroom now and all supplies that are used in any classroom where he is are GF! They made the art room, music room, etc. GF. They refused last year! This year his behavior is off some days but he’s an 8 year old. He started 1st grade at barely over 30 pounds. He was weighed today and he weighs almost 58 pounds. He is still pretty thin but he’s not petite or fragile looking like he was in the past.

We are still giving him supplements (Vitamin B, Omega 3, Nordic Berries, Calcium, Magnesium, Vitamin D, K, C, etc.). His teacher this year has been such a God send and his resource teacher has been a great addition to the team. Her first comment at the beginning of the year was that she didn’t think he should be in the cafeteria so he is no longer eating lunch where he was getting glutened on a regular basis last year (his teacher, principal and resource teacher last year just acted like he was a behavior issue and that it was my issue).

This year it’s a great partnership with the school. Last year we picked him up almost every day. This year we have not had to pick him up once… Why? Because his teachers and administrator understands him and gets how to deal with the issues.

Yes we are still working through some behavior issues with him, BUT his improvement is nothing short of miraculous this year.

Thanks for all the support you give and advice you share.

]]> By: Caryn Talty http://healthy-family.org/caryn/289/scientists-have-discovered-that-celiac-disease-can-be-the-root-cause-of-most-neurological-disorders#comment-960 Caryn Talty Tue, 29 Dec 2009 20:11:09 +0000 http://healthy-family.org/caryn/289#comment-960 That's an interesting idea-- thinking that the extra cleaning process would eliminate mycotoxins. I did research on white enriched rice a while back because I heard someone say it wasn't gluten free on a board. I learned that they use wheat gluten and/or corn gluten to stick the added nutrients back onto the grain because the polishing process strips the grain of its nutrients. We currently eat both white and brown rice. Certain things taste better with white rice in my opinion. I buy organic and un-enriched white rice. I know that Doug Kaufmann (Know the Cause) advocates for brown rice and not white rice. He is one of the foremost experts in the field of mycotoxins and food. He has a television show and does podcasts as well which I download for free onto my iphone through itunes. I've bought two of his books and have recently gotten his audio books on fungi. A lot of what we discovered on our own rings true in his books and what he says on his show. We never did his diet exclusively but did do very similar things for our son's cure. That’s an interesting idea– thinking that the extra cleaning process would eliminate mycotoxins.

I did research on white enriched rice a while back because I heard someone say it wasn’t gluten free on a board. I learned that they use wheat gluten and/or corn gluten to stick the added nutrients back onto the grain because the polishing process strips the grain of its nutrients.

We currently eat both white and brown rice. Certain things taste better with white rice in my opinion. I buy organic and un-enriched white rice. I know that Doug Kaufmann (Know the Cause) advocates for brown rice and not white rice. He is one of the foremost experts in the field of mycotoxins and food. He has a television show and does podcasts as well which I download for free onto my iphone through itunes. I’ve bought two of his books and have recently gotten his audio books on fungi. A lot of what we discovered on our own rings true in his books and what he says on his show. We never did his diet exclusively but did do very similar things for our son’s cure.

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