I won’t experiment with the supplements.I will get the food allergy and histamine,copper,zinc levels checked soon.
And if I do have Pyrrole,Pyroluria then YOU will save a desperate man’s life and I’ll be forever greatful!

Don’t be discouraged by this if you can’t get testing for it in your country. The good news is that you may be able to make some lifestyle changes that can help you feel better while you look for treatment. Lots of doctors have shown that mood problems and irritability and all kinds of health issues can be caused by stomach problems. Pyroluria is no different.

Have you heard of the Paleo Diet? This type of diet may help you. You also need to help your immune system by getting a lot of exercise and time in the sun for vitamin D. There is a lot of information about chelation– this is what people do to get rid of heavy metals in their bodies. But much information is not accurate and can actually do more harm than good if you try to follow it without getting tested for heavy metal poisoning. The good news about heavy metal poisoning is that your body, when it is healthy and you are physically exercising, will naturally chelate toxic metals. I think if you no longer have fillings and if you are not exposed to dangerous toxic metals every day at home or at work (like a dentist is) then you are going to be okay in time.

So try to look at the good, and not the bad. It is hard to do, but you will need a positive attitude if you want to feel better. Make a goal and plan how you will get there. Stay focused on that goal and don’t let daily disappointment get in your way or discourage you. Have faith. If you believe in God, pray. All this works to give you the strength you need to overcome this condition. I found that it was easy to look for the causes and to blame myself for things I did as a mother that caused the condition. But this is not helpful. It does nothing for the cure. In our case we changed diet and lifestyle and it was nine months before we could say it had worked. Know this. Don’t look for a fast cure. I promise if you do these things, and you try everything you can to eat whole, organic vegetables and a lot of them, you will improve even without an official diagnosis. And remember that you are in control of your own behavior, regardless of how you are feeling. You know right from wrong. So don’t go there when your conscious tells you not to. All the best. And good luck finding your cure.

Alot of helpful people on there, and copy and paste your story on there loads fo people will help you!

also check the docs section when they accept you into the group, ALOT of helpful info in the FAQs

Dear Caryn!

I’m a 23 years old male and I think I have this disorder because it covers most symptoms I have found along with mercury poisoning (thanks to severe health anxiety…).

There was a line where you mentioned eye tics after vaccines. There was a time as a child that I remember as getting eye tics from playing too much with the Playstation. Yesterday I asked my Mother about this and she said I remember wrong and that I had developed eye tics in kindergarten,and you say your children got eye tics from vaccine, then I ask my Mom and she says every child got vaccine then this was too much for my brain and I had a panic attack.

I also read about the amalgam fillings. I had 3. At the age ~11 I was chewing a huge bubble gum and a big silver filling came out of my tooth and I swallowed it.

In 2007 I couldn’t handle the stress and bullying in school so I went to psychiatrist.I was put on SSRI for 3 and half years.In 2011 April I quit it cold turkey (because my psycho quack didn’t inform me about that I SHOULDN’T DO THAT) and I’m still suffering withdrawal to this day 2012.02.09.

It really messed up my brain, possibly my thyroid also. I learned that you need to deal with the root cause of the problems and the first problem that is 100% sure is getting eye tics from vaccines.

I’m so mad knowing that I could have been a person without all this vaccine, pyrrole and mercury. Having friends, girlfriends and going to parties and living life the way one should and being taller, having education BUT NO. I want to kill myself now but first the people who put vaccines and amalgam fillings in me.

Here I want to list you my symptoms,problems in order of developing:
-eye tics (I outgrew them)
-droopy eye lids (became less noticeable)
-strong will
-tongue-tie (still)
-agression
-eye floaters (getting worse)
-tinnitus,ringing ears (not got better,continous)
-visual snow (getting worse)
-acted like if I wasn’t on the same level with my classmates,like I was 5-6 younger than them brain-wise (still)
-incoordination
-phobia of objects
-dark circles under eyes,had it since child
-mouth breathing (still)
-emotional instability
-hand tremor,head tremor (becomes severe in social pressure,stress)
-loss of self-confidence,developed severe perfectionism
-day dreaming,drowsiness
-excessive saliva (I was spitting on the floor of my room, I was only age 11-12.)
-started smoking
-severe depression (still,got better)
-severe anxiety (still,getting worse)
-afraid to enjoy life
-body very hairy (my back and chest and stomach was already hairy while my classmates started to develop armpit hair.but they DO HAVE FACIAL BEARD and I don’t)
-severe phobia of dentists
-crazy thinking,skizophrenic mind
-racing thoughts
-symptoms of estrogen dominance,hypothyroidism,mercury poisoning,adrenal fatigue,brain damage and so on…
-addictions (though quit smoking 3 months ago,it was easy because I still have addictions like PC and internet which is too hard for me to quit)
-lost all my friends
-depersonalization
-derealization
-bruxism (more mercury = more fun!)
-people label me as lazy,bug me why I don’t get a job
-had to quit high school due to severe brain fog from SSRI use
-delayed sleep phase disorder
-phobia of hospitals and everything medical check up related (wanted to get myself checked with endocrinologist, she sent me to bloodtest in hospital. I had panic attack in the hospital. Don’t try to imagine it how worse it was…….)
-hypoglicemic reactions
-became from good looking to ugly
-gained weight I couldn’t lose
-white spots on nails (when I was 8-20 years old)
-feeling of my heart beat,palpitations
-OCD IS SEVERE……going crazy.SSRI made it worse.
-sensitive to light
-falling hair
-all my joints are cracking, popping
-feeling like there’s something in my throat,sometimes hard to swallow
-after quitting smoking 3 months ago I still have shortness of breath
-IBS? Don’t know for sure.For a long time,even before started taking SSRI I had some trouble swallowing food and also stomach acid rose to my mouth.
-my hands get severly cold sometimes I need to put them on hot water,also my feet gets cold but that’s not severly
-irritability
-agression towards loved ones
-mood swings

Please help me where to start. Imagine all these problems everyday for the past year and most of them for your whole life.

Thank you!
Steven from Europe