Meet Our Members

[theretrohousewife]

Isa will be 3 next month.
   
I first noticed Isa's symptoms in August however I realize now she has been having tics for over a year, she would swipe her bangs out of her eyes even if there was nothing there, I thought it was a habit from before I cut her bangs short.

Isa was diagnosed with Chronic Multifocal Tic Disorder in Sept. I think its Tourettes but we will see.

We really havent tried too much. Her gastro doc wanted her off milk and cheese for her constipation to our surprise her tics reduced drastically. Now we are trying gluten free to see if it helps. We have been doing it for 4 days...nothing yet.
 
She has been having a few more tics since we took her off gluten. I dont see too many patterns.

Would love to write more but I have an appt to get to.

[Caryn]

My son (I call him Tigger) will be 5 in two weeks, which I can't forget because he is counting down the days until his big birthday party. It is the first time we are having an all kids party and he is so excited about it that he can hardly think of anything else.
We first noticed symptoms in Tigger about four months before his fourth birthday. I have written a summary of our experiences at: http://healthy-family.org/caryn/289 for anyone interested in learning more of the details. For now I will try to keep it short and sweet.
Tigger was first diagnosed just after he turned four, after having had chronic tics for about six months. At that time we saw a lot of waxing. Any waning at all was minimal. We always had several movements going on all day long. At his worst he was constantly blinking, grimacing, shoulder shrugging, sleeve pushing, and sniffing. There were other tics, some morphed from one kind to another. He had a constant habit of grinding his teeth too, and at one point, just after the holidays, he became obsessed with washing his hands and having to change his clothes each time he urinated. Those were scary times for us, because we didn't know what was going on. We had all kinds of testing done to rule out the obvious: tumors, seizures, eye problems. He checked out fine, and so we visited a neurologist who finally dx'd our son. She said that if the symptoms persisted for a year he would be dx'd with classic Tourette Syndrome and that he would need medication to control the tics.
Thankfully, because she wouldn't prescribe for six months, we had no option but to try to find alternative methods to help him while we waited. What ensued over the next few months was a roller coaster ride of sorts. We tried all kinds of methods, from heavy vitamin/mineral/enzyme treatments, to a candida cleanse, to a blood type diet, to chiropractic adjustments, to acupuncture. All treatments helped to alleviate symptoms, but it was hard to know what was working and what wasn't. We were in a quandry. Another TS parent highly suggested going GFCF and doing the Alcat test. We took the test and while we waited we did just that. The results finally came in and revealed the bare truth: our son had 17 allergies and the most severe were his wheat and corn allergies. In addition he was gluten intolerant.
We hunkered down and cleaned out the kitchen, got rid of all our corn and gluten stuff and I hit the internet for any info I could. The first few months were very hard. For starters, I had to learn to cook. Eventually I found my brands and learned a few good recipes that we rely on regularly. We no longer look at food as something that we enjoy for taste, but rather as medicine. It has healed our son and stabilized him. I now use the food in lieu of heavy vitamin doses or enzyme treatments. It was a slow road to recovery and now after being GFMF for nine months there has been a tremendous improvement with our son. We do get minor relapses when he gets accidental contamination, something that happens rarely but will linger 3 to 4 days when it does. So I hesitate to say he is 'cured'. Cured means he is fine and can go back to business as usual. No. He is recovered. Simple as that.
In our case I see tics when he gets accidental corn and no wheat, as well as when he gets wheat with no corn. To me there really is no difference. It appears as if both grains have a similar ability to damage the CNS. I wonder if others have found similar experiences. In our house we do eat dairy products but we are dairy reduced and often use substitutes in cooking, as I worry that he will develop an allergy to dairy and I am not too sure on the effects of casein, as I know that it is an issue for many families that are fighting autism.
As part of the healing process we have also gone as organic as the pocketbook allows, and we follow the Feingold diet (no additives, preservatives, artificial colors or flavors).
That's all for now!

[ives6797]

HI! I am Dawn, my son is Anthony, he will be 5 in May. We live in CT. He has a brother (will be 3 in April) and a sister (will be 7 in June) as well.

Anthony started blinking A LOT around the time he started pre-k, about Sept 2006. I brought him to an eye dr thinking maybe he needed glasses (I have horrible eyes, got them from my dad who had glasses at age 4) but they said his eyes were fine. He was referred to the school OT (he was already in speech therapy, started that with the Connecticut Birth to Three program at 20 months). The OT said he has Sensory Integration Dysfunction, apraxia, hypotonia, fine motor, motor planning, and visual motor difficulty.

The blinking went away for a month or two, after he had done it from about Sept to May. Then in early July (after a bunch of vaccines, so maybe that pushed him over the edge) he started the blinking back up and, at the same time, added a couple more, including a vocal tic. I brought him to a pediatric neurologist who confirmed the above and said it is all neurological, including his oral motor issues as well. The OT had thought his tics were 'stimming', the pedi neurologist said it is not stimming, but neurological tics. She said he has neurologic impairment but didn't specify what kind, I asked. I went home and told my hubby that she must not suspect TS bcause she didn't mention it. That's what I assumed but as it turns out, I didn't realize she just didn't want to bring it up and 'shock me' or whatever.

Here are 3 short video clips I took of Anthony last summer, before the GFCF diet:

http://www.geocities.com/ives6797/anthonyvids.html

You can hear the verbal tic if the speakers are up a, lots of blinking and tongue/lip tic.

He is NOT like this now, on teh diet. He gets some tics back (not as bad though as it was!) if we slip from teh diet, like we did over the holidays, we let him have some things that he wasn't supposed to, and he is still ticcing some now because of that.

Oh, I also wanted to mention that DAIRY causes extreme hyperactivity for my son. I had taken him off of gluten AND dairy in early August and recently wondered if I should've done one at a time, say in case gluten was a problem but not dairy, wouldn't want to keep him off dairy I didn't have to... a few days on dairy, though, and he was SO hyperactive... he was gettting into a LOT of trouble at school and having a horrible time sleeping too! We took him off and it took I think a week (?) after the last time he had dairy before he was 'normal' again. His teachers definitely are glad we have him on the diet!

We did not have any known TS in our family, but there may have been something like OCD. I worry about my other kids, especially my younger son because I think he also may have sensory issues like Anthony, and if so, that is neurological and can go hand-in-hand.

I made a video for my son, please check it out:
http://youtube.com/watch?v=-9yTKEsUOLo

If you have any questions, feel free to ask!

(eta: FIXED LINKS! THANKS!

***I should add the supplements he is on too... besides being GFCF, I also give him AFP Peptizyde chewables (enzymes for digesting gluten, casein, soy), DHA (Nordic Naturals strawberry softgels), and a daily probiotic (Nature's Plus AcidophiKidz berry).

I forgot another supplement: I recently started giving him Kensho from http://www.ourkidsasd.com It is a formula for hyperactivity but I've also read that magnesium (which it contains) can help tics, so maybe it can be a "2 birds with one stone" kinda thing I also rub an epsom salt cream on his back at naptime and bedtime (again, manesium), or you can put some epsom salt in the bathwater. Originally I bought an expensive cream on OurkidsASD.com but have now learned how to make my own for CHEAP. Anyway if you want the recipe just let me know.

ALso should mention that my son has sensory issues as well and gets public (school) and private OT. He also gets speech therapy at school too (been in speech since 20months, he has come a LONG way!)

Dawn

[maryfmiller]

Hi, I'm Mary.
Thanks Dawn for letting me know about this forum.  Our journey included neurologists who only wanted to drug the tics.  The drug we tried gave our son night terrors (and didn't help the ticcing).  That's when we started looking for other solutions.
My son is Ben - he's 7 1/2 and is now tic free (almost all the time) after going GFCF.  We are soy and peanut light.  We also try to keep out preservatives, dyes and corn syrup and are relatively organic.  I also give Ben vitamins, magnesium, zinc, calcium and ProEFA. 
The videos of Dawn's son could have been my son when he was 4 and 5 - right down to the hmm hmmm tic. 
We did the IgG ELISA panel and my son came up off the charts for wheat/gluten and very high for all dairy.  We had to pay for this out of pocket and it is expensive, but I'm glad we did it.
Hi Isa's mom - what is your name?  I just wanted to also say that we saw results for dairy right away, but gluten takes weeks to leave the body.  Ben's tics reduced a lot when we went off dairy, but it wasn't until we were off gluten for about 2 months did they leave all together.
I also wanted to mention that Ben's diet is terrible.  I think that is one symptom to indicate that a GFCF diet might help.  I'm not saying that's true of everyone, but it's an interesting correlation I've noticed over the last few years.  Back when he was ticcing, he had a strong affinity for foods that were - wheat and dairy!  What else?  Cereal, PB&J sandwiches, chicken nuggests, cheese pizza, mac and cheese, etc.  A friend pointed out that that could indicate that he was sensitive to these foods.  Now that we're GFCF, his diet is better, but still a problem.
Ben also has sensory issues.  I think that's part of his problem with food - texture. 
When Ben came off dairy and wheat - in addition to helping his tics - it was as if he walked out of a fog.  He talked more, he seemed to listen better, he started playing with kids instead of just near them, etc.  I think that before he had a hard time processing what he heard (we had his hearing checked and it was fine).  Now he can listen and remember.  He stopped having so many melt-downs and tantrums.
He will still occasionally tic - usually after exposure to strep or other viruses - but they're light and leave after a week or two.  He's generally totally tic free now.

Mary

[sterlingsmom]

 ;DI am so glad to see a new forum. I think I have some similar names on the ACN Forum.
The video someone posted of her son with an eye tic almost made me cry, my son was just like that and worse sometimes. It has been a LONG, LONG road, but we are finally getting some where. We have been tic free since November! I will give a brief of my story below of what worked and what did not, I think it may help someone new at this whole thing. I must say the ACN Forum was where I got all of my information, I seemed to know more than the doctors at times!
I will start by saying that Sterling was always a very hyper, active, verbal, strong-willed, moody, sometimes aggressive and VERY sensitive boy. He did not sleep through teh night good for 3.5 years, he did not eat good or nap good and had MAJOR separations problems (and I worked until he was 3). he also has had 4 sets of tubes, adnoids and tonsils out. Before he turned 4 he started with the tic (I was also abotu to have boy #2), it was bad. We went to the eye doc, and ped and got drops, etc but vision was fine. The tic went away, but came back a few months later. The Ped said he some nervous problem and gave him a ADHD med, but also tested his Strep levels, which were positive. We started on the PANDA's track wtih antibotics which took care of the tic immediatly. he was on antibotics for most of the year. The tic came back last September and the antibotic did not work, it just got worse and worse. We tried everything, oh, his behavior was terrible the first 2 months of kindergarten. I started doing research on natural thearobies and to shorten my story I will just tell you what worked. The third antibotic helped the tic, but behavior was still very bad and he was even wetting his pants. We had him allergy tested that summer and found out he had a light allergy to Eggs. After taking him off then reintroducing it, we noticed major fits and anger. he is egg free now and if he has anything with eggs we know the "fiesty,evil" comes out. We started doing the fiengold thing and I took him off of all dies (once you do reading to see what the artificual stuff really is, it does not sound so good anymore), this was HUGE too. He is much less Hyper without it. After seeing a Natropath, we did a Candida test, which was neg and did a blod sensitivity test. He was through the roof on all dairy's and gluten/wheat! SO, we are not GF/CF/EF and Die Free and what a difference. We made the CF/GF change over Christmas and he has gotten a smily face at school since he went back, the teachers can not believe the change. It was VERY stressful when we took this on, but once you get the hang of it, it is not so bad. You just adjust. He is so much calmer (not perfect, he is just 5), he listens so much better and can control him self better.
We also saw a neurologist during all of this and had an MRI and he was fine. The neurologist is going to check his strep levels in March for a follow-up. Oh, I forgot, he is a sensory kid also, we had about 3 months of OT this summer. His teacher is very skilled in sensory disfunction and works with him on things. Anyway, it is a very long road, we spend a ton of money on specialty food, but it works.
I will be sure to post some questions on the other forums.
Thanks for starting the forum!

[Terri]

Hi - My name is Terri, mom to J, who is 5 1/2.  Tics are a very new thing for us -- just started over the last week and a half or so. 

We actually started our dietary journey with his older brother, P (almost 9 now) who had a York Allergy test when J was an infant.  P seemed to get almost manic at times, primarily due to reactions from corn.  When we got his York results back, we were shocked by the number of foods that were problematic for him.  We removed all of the offenders (including gluten, casein, corn) and he seemed like a different child, seemingly overnight.  Right around the time things were looking good for P, we started J on solid foods.  Without getting too graphic, the resulting diapers were distressing (to say the least ) and he often had yeast-y infections that would result in painful, weepy, bleeding skin.  Our pediatricians treated me as though I was crazy -- that it was normal for kids to get diaper rash and told me to stop giving him juice (despite the fact that I would *never* give him juice because of his digestive issues.)  They grudgingly agreed that I could always get the opinion of a gastroenterologist - and I did - but they weren't much help, either - and seemed to just accept that my pediatricians knew better than I did.

So - I found another doctor.  One who actually listened to what I was saying.  When she told me I was right to be concerned, I think I almost broke down in her office - I was so relieved.  She helped me find another gastroenterologist who did an upper endoscopy and sigmoidoscopy to rule out any intestinal damage, celiac disease, etc.  Everything looked clean -- and the only blip on the radar was a decreased amount of the glucoamylase enzyme (which is responsible for starch digestion.)  Of course, this was followed with *more* written instructions for Toddlers Diarrhea (still telling me to avoid juice!!) and mentioning that I might think about limiting his starch intake.

While looking into enzymes and starch elimination diets, I came across information on the Specific Carbohydrate Diet.  I think I read Breaking the Vicious Cycle in one sitting and it just made so much sense to me -- I started it the very next day.  On Day 2, J had the first normal diaper since starting solids -- and he was 2 1/2.  We followed the diet strictly for a year, even though his symptoms disappeared after a few weeks.  For the past year or so, we've been much more lenient in what he can have, but we would still limit his intake of starch to very small amounts.  I believe our major problem is keeping the bad bacteria at bay -- and that J is very susceptible to Candida overgrowth, which sets his whole system off and causes cascading symptoms.

So -- now that these tics have come from out of the blue, we've gone back to square one.  We've pulled all di-saccharides and poly-saccharides from his diet (starches and sugars) and we're hoping for the best.  We saw his pediatrician today - for my own sanity - and she doesn't feel there's really too much to be done for his tics at this point - unless things escalate. 

Tics we're seeing include - shoulder shrugging (he touches his ear lobes with his shoulders, alternating between the two), shuffles his feet, some blinking, opens and closes his lips, touches his fingers (in a pattern), pats his hands on his legs.  He says, "I like all the parts of my body to have the same amount of touches," and seems to want to keep things even on both sides.  He's also told me to use a specific hand a certain number of times while loading groceries into the car or turning the pages of books (in a pattern, using each hand equally).  Those behaviors have only happened a few times -- and that is what my pediatrician was most concerned about at this point.   I try not to make a big deal of what's going on, but I have asked him questions about it (gently -- he's a fragile one.)  When I asked him if he could stop them, he said, "Of course I can!"  Then I asked him why he didn't stop and he said, "Because my brain will just *torture* me until I do it, so I just do it."  He also says that he gets pains in his heels and if he shuffles his feet, etc -- the pains go away.  ??

So -- needless to say, I'm very anxious to learn from all of you who have been down this path.

[szcasey]

Hi, I'm new to the board.  I LOVE this website and the boards.  I've gained so much information in the last few hours.  Although, I'm going blind from computer-burn-out.   Thanks to everyone for all of this wonderful information!

I am a SAHM with 2 children.  No known cases of TS in the family history.

My 5 year-old son began blinking a lot in September.  Then began tic'ing October, about 2 weeks after his varicella booster.  He was tic'ing so much that he was often hard to watch.  As soon as this began, he stopped sleeping through the night and began having night terrors.  Additionally, he is a lot more hot-tempered.  His temper tantrums and poor sleeping still persist.

We've had all sorts of tests and seen a neurologist.  At this point, he's been diagnosed as having a few simple motor tics. 

The tics stopped after we treated him for Lyme Disease.  The tics slowly came back but not as strong as in October.  He then was treated for a case of strep throat and, again, the ticing stopped.  His ticing has started up again but again not as severe as in October.

His tics are somewhat different this time around... it's baffling.  He's also started sniffling off and on, which I think is the vocal tic in TS.

I have him on the CALM magnesium supplement, which seemed to help.  I think I will look into allergies next.  I've just started reading Victory over Tourette's Syndrome and other Tic Disorders by Denise Buzbuzian (it's very interesting so far).

Forgive my ignorance, but what is an IgG test?  Will a primary care doctor run this blood test or do I need to take him to an allergist?

Thanks again.  So much information... so much more for me to learn to help my boy.

[Caryn]

Hi szcasey!
Boy, we have a lot in common--
both our boys are 5 and both started ticcing after a varicella vax. (We also had a hep B with that one). Our ds had sleep problems as well in early onset. Definitely good that you started with magnesium supplements. The magnesium will help him relax his CNS and hopefully help with sleep issues.  Did he get courses of antibiotics with his treatment for Lyme Disease and the Strep Throat?

We saw the sniffing tic first, then came the eye blinking and that was followed by a whole host of other tics that eventually kept him out of school for almost two weeks.
An IgG test is a white blood cell test that measures food and chemical intolerances. I used the Alcat for Tigger but there are many labs to choose from. Check out our thread on Lab Tests to Consider. You will find a compiled list of possible labs. We did not use an allergist for the IgG test. We actually went through our chiropractor because our former pediatrician said that he did not believe in those tests. I will tell you that in our case the test made all the difference for us in pinpointing what was triggering the tics. (Wheat and Corn). He has severe intolerances to both. I would have been racking my brain for over a year doing an elimination diet to figure out the corn thing. It is in 80% of all processed foods. They even dust some cheeses with it, coat balloons with it, etc.... At least the test results (which is 80% accurate in a double blind study) gave us a place to start and build from. He originally had 17 food allergies and a few environmental ones. Now he eats everything in rotation except the wheat and corn and gluten. He is doing great, and is symptom free since Christmas (knock on wood!). We also do low sugar, as organic as we can afford, and no artificial ingredients (colors, flavors, preservatives). If you do decide to do an IgG test you may want to consider doing a candida test as well. Candida overgrowth seems to be a fairly common issue among many kids with tics.
Anyway, I just want to say welcome!
Caryn

[GinaLyn]

Hi!
I'm Gina and my daughter's name is Lyn. She is 3 years old and has started blinking a lot and stomping her feet. I haven't made a doctor's appointment yet. We are on a budget here and I am wondering what I should do. I'm really worried about her and scared. I'm a single mom.

[Caryn]

Hi Ginalyn,
Welcome to our forum. I'll post a response in our updates thread.
http://healthy-family.org/forum/index.php/board,23.0.html

[mishlong]

HI! I am Dawn, my son is Anthony, he will be 5 in May. We live in CT. He has a brother (will be 3 in April) and a sister (will be 7 in June) as well.

Anthony started blinking A LOT around the time he started pre-k, about Sept 2006. I brought him to an eye dr thinking maybe he needed glasses (I have horrible eyes, got them from my dad who had glasses at age 4) but they said his eyes were fine. He was referred to the school OT (he was already in speech therapy, started that with the Connecticut Birth to Three program at 20 months). The OT said he has Sensory Integration Dysfunction, apraxia, hypotonia, fine motor, motor planning, and visual motor difficulty.

The blinking went away for a month or two, after he had done it from about Sept to May. Then in early July (after a bunch of vaccines, so maybe that pushed him over the edge) he started the blinking back up and, at the same time, added a couple more, including a vocal tic. I brought him to a pediatric neurologist who confirmed the above and said it is all neurological, including his oral motor issues as well. The OT had thought his tics were 'stimming', the pedi neurologist said it is not stimming, but neurological tics. She said he has neurologic impairment but didn't specify what kind, I asked. I went home and told my hubby that she must not suspect TS bcause she didn't mention it. That's what I assumed but as it turns out, I didn't realize she just didn't want to bring it up and 'shock me' or whatever.

Here are 3 short video clips I took of Anthony last summer, before the GFCF diet:

http://www.geocities.com/ives6797/anthonyvids.html

You can hear the verbal tic if the speakers are up a, lots of blinking and tongue/lip tic.

He is NOT like this now, on teh diet. He gets some tics back (not as bad though as it was!) if we slip from teh diet, like we did over the holidays, we let him have some things that he wasn't supposed to, and he is still ticcing some now because of that.

Oh, I also wanted to mention that DAIRY causes extreme hyperactivity for my son. I had taken him off of gluten AND dairy in early August and recently wondered if I should've done one at a time, say in case gluten was a problem but not dairy, wouldn't want to keep him off dairy I didn't have to... a few days on dairy, though, and he was SO hyperactive... he was gettting into a LOT of trouble at school and having a horrible time sleeping too! We took him off and it took I think a week (?) after the last time he had dairy before he was 'normal' again. His teachers definitely are glad we have him on the diet!

We did not have any known TS in our family, but there may have been something like OCD. I worry about my other kids, especially my younger son because I think he also may have sensory issues like Anthony, and if so, that is neurological and can go hand-in-hand.

I made a video for my son, please check it out:
http://youtube.com/watch?v=-9yTKEsUOLo

If you have any questions, feel free to ask!

(eta: FIXED LINKS! THANKS!

***I should add the supplements he is on too... besides being GFCF, I also give him AFP Peptizyde chewables (enzymes for digesting gluten, casein, soy), DHA (Nordic Naturals strawberry softgels), and a daily probiotic (Nature's Plus AcidophiKidz berry).

I forgot another supplement: I recently started giving him Kensho from http://www.ourkidsasd.com It is a formula for hyperactivity but I've also read that magnesium (which it contains) can help tics, so maybe it can be a "2 birds with one stone" kinda thing I also rub an epsom salt cream on his back at naptime and bedtime (again, manesium), or you can put some epsom salt in the bathwater. Originally I bought an expensive cream on OurkidsASD.com but have now learned how to make my own for CHEAP. Anyway if you want the recipe just let me know.

ALso should mention that my son has sensory issues as well and gets public (school) and private OT. He also gets speech therapy at school too (been in speech since 20months, he has come a LONG way!)

Dawn

[nicole s]

Hello!

My name is Nicole. My son is 8 years old, he was just diagnosed with Chronic tic disorder last week. When he was 5 I noticed him making a quite humming noise , you ould only hear it if you were right next to him. Then about a few months later he started with the constant blinking and nose wrinkling. Naturally I was concerned and took him to the doctor and he said it was allergies, but it just didnt seem right to me so I never gave him any med for it. I took him to another doctor she said it was just a habit. Then we moved when he was six, so he saw a new doctor and he said he probably has a mild tic and nothing was every said after that, so I figured it was something he would grow out of.

About 3 weeks ago, he started neck jerking, shoulder shrugging and abdominal tightening. So took himback to the  doctor and thats when he was diagnosed, he is also showing symptoms of anxiety, which doesnt suprise me , he is a worrier and I suffer from panic disorder. My son is and always has been a very, I mean very picky eater. I'm trying to change this as of today. I'm shooting for gluten free. I also heard yeast and malt are bad , can anyone comfirm this?
Thanks
Nicole

[Caryn]

Hi Nicole,
Welcome to the forum.
Does your son have digestive problems? Has he been on a lot of antibiotics over the years? Yeast is a problem for many folks with tics who test for it. We have not done the OAT test or the Yeast test with Great Plains, but many have and rave about it. Overgrowth can develop when there is too much bad bacteria in the gut (due to too much antibiotics in some cases). Many find results when they do yeast free, dairy and casein free with enzymes and probiotics. This is the route we took, but we also avoided all the allergic foods on our IgG food intolerance test. We also avoided all artificial flavors, colors, and preservatives, too. We stuck to the diet for six months and saw a slow, steady recovery. It didn't happen overnight.
We still avoid gluten, corn, and all things artificial in the diet. We eat a lot of whole foods now and my son can have small bits of yeast and dairy on occasion without issue. This is two years into the process of healing. He no longer has the many digestive symptoms that he once had. He has grown a whole lot physically and looks so much more healthy overall-- skin tone, body shape, complexion, disappearance of eczema and daily stools that are well formed. He still can get tics but they are so slight now that they are not noticeable to regular folks. And they always coincide with accidental ingestion of allergens or flare ups of pyroluria (due to stress). I do supplement his diet regularly with magnesium, fish oil, and B-complex. In the winter I supplement with Vit. D as he gets little sun and we live in a cold climate. When he has exposure to his allergens I give him Benadryl and I will supplement with milk thistle (to help his liver). 
What kind of doctor are you working with? Our original pediatrician would not write the script for the IgG test because he 'doesn't believe in it'. We ended up getting our chiropractor to do it. We since found a fabulous general practitioner to work with who has been very helpful and open minded. We do our lab testing through Pfeiffer Center and get consult from an on staff pediatric DAN! doctor (defeat autism now). We do not see a neurologist at all for our son. We don't see the need, to be honest, as he is developing normally and is virtually symptom free for over 1 1/2 years.
Caryn
btw-- malt has gluten in it-- unless, I believe, it is rice bran malt. I am not sure about yeast content in malt. We don't eat anything with malt in it.